Syndrome without a name: The boy who baffles doctors

Working out what makes Charlie Parkes ill is like fitting together “little pieces of a puzzle”, his mum says.
BBC News – Health

Fultz diagnosed with thoracic outlet syndrome

Sixers guard Markelle Fultz, who has been diagnosed with thoracic outlet syndrome, is expected to miss three to six weeks as he rehabs his right shoulder, sources told ESPN. – TOP

Chronic fatigue syndrome treatment ‘should be withdrawn’

A leading expert on the illness says some people are being harmed by graded exercise therapy (GET).
BBC News – Health

Strangers Come Together to Help Man With Down Syndrome Rebuild His Movie Collection After Fire

When a raging wildfire destroyed Mark Orsillo’s home and prized movie collection, strangers from around the country rallied together on Facebook to make sure that the 34-year-old man with Down Syndrome wouldn’t have to wait to begin rebuilding.

Orsillo and his parents only had about 20 minutes to evacuate their Oroville, California home as the fire approached on Saturday night. Danielle Devine, Orsillo’s sister, rushed to help her brother gather his belongings. Devine was able to fill two bags, but she knew she needed to rescue a portion of Orsillo’s collection of 300 movies. With time running out and no room to spare, she was only able to save about 20 DVDs. Her parents, Pastors Steve and Vicki Orsillo, saved what they were able to throw into their car.

When the family returned, they saw that the house they had lived in for 27 years—a house that Steve Orsillo built—was completely incinerated, and nothing was salvageable. “Mark’s apartment is attached to my parents’ house and both were just completely gone, just totally gone. That was our childhood home,” Devine tells PEOPLE. Her brother, meanwhile, was still reeling from the loss of his collection.

“DVDs for Mark are everything,” Devine says. “He watches them, talks about them, collects them and organizes them, they’re his hobby.”

On Monday, in an effort to help ease some of Orsillo’s pain, Devine posted to Facebook asking people to donate any unwanted DVDs to her brother. “He is an OCD movie collector and lost hundreds of movies,” she wrote in a Facebook post. “This is very hard for him.”

It didn’t take long for the movies to come rollin’ in.

Within hours, strangers from around the country left comments announcing the DVDs they were sending Orsillo’s way. They included movies and TV shows like Spider-Man, Kindergarten Cop, Harry Potter, and Mighty Morphin’ Power Rangers. “The response has been incredibly surprising,” Devine says.

As of Friday, Devine says her brother’s new collection has now reached close to 400 DVDs, and she thinks it may top a thousand in the coming weeks.

The family is doing well after the fire, Devine says, and Steve Orsillo plans to rebuild the house on the property. A donation page has been set up the assist the family and has already surpassed $ 12,000. And while it is wonderful her brother is getting attention, Devine wants to remind others that there were many families who lost their homes during the fire, and they need help, too. Today, the fire is 95-percent contained.

On Friday, Devine posted a heartwarming video of Orsillo seeing his new collection for the first time:

Devine, who played basketball at Arizona State, says her brother was always her biggest fan when she was on the court. “It’s really cool that I can return the favor now, because I am his biggest fan.”

“Mark is just the most loving person you’ll ever meet,” Devine continues. “He doesn’t have any bad days, he forgives everyone very easily and never gets offended. It’s almost like the love is being returned to him a million times over, and he deserves it more than anybody.”

“Yes I do!” Mark excitedly yells in the background.

Devine laughs. “Yes, you do,” she says.

Fashion Deals Update:

Man Proposes To Bride’s Sister With Down Syndrome: Will You Be My BFF?

The bride-to-be says she and her sister will both wear white.
FASHION NEWS-Visit Shoe Deals Online-Fashion News today for the hottest deals online!

Teen With Down Syndrome Got Asked To Prom In The Sweetest Way

Sure, it’s a little cheesy but this just might be the most thoughtful prom proposal ever.

On Sunday, the Facebook page Love What Matters posted a heart-meltingly cute video of 18-year-old Shaedon Wedel asking his best friend’s little sister to the prom. 

Carlie Wittman, 15, has Down syndrome and her favorite chips are Doritos. Naturally, Shaedon tried to work some nacho cheese-inspired comedy into his prom invite.

“I decided on the Doritos theme because I have known her for seven years and there has not been a day that I have not seen her eat Doritos,” the high school senior told The Huffington Post. “She absolutely loves them!”

Here’s the truly inspired shirt he made:

“I know I’m NACHO typical Dorito,” the shirt reads. “But I’m going to be CHEESY and ask: WILL YOU GO TO PROM WITH ME?”

It’s fair to say Carlie was thrilled about the punny proposal. Just look at her reaction: 

The pair are scheduled to go to the senior prom on April 22. The sweet moment has garnered more than 108,000 “likes” and 32,000 shares on Facebook ― and that number keeps climbing. 

“We taped it because she loves to be on the camera; we didn’t expect this to go so viral,” Shaedon said. “It has been a very neat and exciting experience.”

Initially, Shaedon, Carlie, and Carlie’s brother Carson ― Shaedon’s best friend ― were going to go to prom as a group. But after Carson met his girlfriend during the school year, Shaedon moved forward with his plans to ask Carlie.

“She says she wants to be a princess like Cinderella and it would mean everything to make her feel that way,” he told HuffPost. “The Whitmans are basically my second family and have been so kind and nurturing to me. My main goal is to make Carlie’s prom as special as possible.”

Nacho about you, but we’d say Shaedon is well on his way to doing just that.

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Weddings – The Huffington Post
FASHION NEWS-Visit Shoe Deals Online-Fashion News today for the hottest deals online!

Did Debbie Reynolds die of broken-heart syndrome?

FILE- In this Sept. 10, 2011, file photo, Debbie Reynolds, left, and Carrie Fisher arrive at the Primetime Creative Arts Emmy Awards in Los Angeles. Reynolds, star of the 1952 classic "Singin' in the Rain" died Wednesday, Dec. 28, 2016, according to her son Todd Fisher. She was 84. (AP Photo/Chris Pizzello, File)LOS ANGELES (AP) — Dying of a broken heart is real.

Entertainment News Headlines — Yahoo! News


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69 Syndrome

69 Syndrome

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The Irritable Bowel Syndrome Sourcebook

The Irritable Bowel Syndrome Sourcebook

The Irritable Bowel Syndrome Sourcebook is a guide to taking control of this debilitating condition-from creating a journal, to tracking IBS triggers (food, drink, and stress), to finding the right diet and exercise to counteract the condition. You will also learn how alternative therapies may be helpful and how simple stress relievers can improve your daily life.

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Health Tip: Exercising Despite Chronic Fatigue Syndrome

Start slowly so you don’t overdo it Daily News
SPECIAL NEWS BULLETIN!- -As millions of Americans strive to deal with the economic downturn,loss of jobs,foreclosures,high cost of gas,and the rising cost of prescription drug cost. Charles Myrick ,the President of American Consultants Rx, announced the re-release of the American Consultants Rx community service project which consist of millions of free discount prescription cards being donated to thousands of not for profits,hospitals,schools,churches,etc. in an effort to assist the uninsured,under insured,and seniors deal with the high cost of prescription drugs.-American Consultants Rx -Pharmacy Discount Network News-

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The Inflammation Syndrome

The Inflammation Syndrome

Early acclaim for ‘The Inflammation Syndrome’: ‘Challem’s new book hits a home run – with the latest research on what to eat and take to defeat our real number – one cause of health problems – inflammation. It’s a message of the utmost importance’ – Jean Carper, ‘New York Times’ bestselling author of ‘Stop Aging Now!’ and ‘Your Miracle Brain’, and columnist, ‘USA Weekend’ magazine. ‘Treating and preventing inflammation has become a major priority and a breakthrough in today’s medicine. Many of our most debilitating diseases can be traced to an inflammatory cause. The program Jack Challem outlines in ‘The Inflammation Syndrome’ is a great first step in ridding your body of this deadly problem’ – Fred Pescatore, M.D, author of ‘Thin For Good’, ‘The Allergy and Asthma Cure’, and ‘Feed Your Kids Well’.”The Inflammation Syndrome’ compellingly shows how the typical Western diet promotes inflammation and disease. In a scientifically accurate and easy-to-understand manner, Jack Challem lays out the basic nutrition plan for good health and weight loss – a plan that mimics many features of the ancestral and native human diet’ – Loren Cordain, Ph.D, author of ‘The Paleo Diet’.’Jack Challem has hit the bull’s-eye when it comes to identifying the root cause of chronic inflammation – our pro-inflammatory Western diet. Following Challem’s recommendations will not only relieve inflammation, it will lay the groundwork for optimal health’ – Jo Robinson, coauthor of ‘The Omega Diet’ and principal investigator of’In this book, Jack Challem focuses on inflammation, the most important underlying factor in health and disease. Anti-inflammatory strategies can slow the chronic and degenerative diseases of aging-even aging itself. Jack Challem shows us how the antioxidant vitamins E and C, modifying lifestyle factors, food and nutritional supplements, and nutraceuticals can be useful in reducing the risks of inflammatory disorders’ – Lester Packer, Ph.D, the world’s forem.

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The 2002 Official Parent’s Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for the Internet Age

The 2002 Official Parent’s Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for the Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to fragile x syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on fragile x syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Fragile X Syndrome: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Fragile X Syndrome; Chapter 4. Patents on Fragile X Syndrome; Chapter 5. Books on Fragile X Syndrome; Chapter 6. Multimedia on Fragile X Syndrome; Chapter 7. Periodicals and News on Fragile X Syndrome; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Fragile X Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child’s Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child’s Rights and Insurance; ONLINE GLOSSARIES; FRAGILE X SYNDROME GLOSSARY; INDEX. Related topics include: FRAXA, Marker X Syndrome, Martin-Bell Syndrome, X-linked mental retardation, X-linked Mental Retardation and Macroorchidism.

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